There is an element of positivity you need to adopt when you’re a parent of a child or children with special needs. If you don’t try to put a positive spin on things, you would cry over everything.
For example, one of my boys came home the other week with MAJOR road rash on his face and knee. The teacher sent me a message to tell me that at the end of the day he was excited to be outside with his class and was running and fell on the pavement. I could have been upset about the fact that he had horrible scrapes on his face, but I thought ” hey! He was RUNNING!” Something we weren’t sure he would EVER do since being diagnosed with cerebral palsy several years ago.
Today, I sat in the school library, during the boys kindergarten celebration ( the school has historically not done a graduation), and I sat and cried. Most of the moms were crying because their babies were “graduating” kindergarten, I cried because it was one of the moments where I realized how DIFFERENT my boys were from their peers. While the other kids sang song and recited poems, my boys smiled at the crowd of smiling faces and squealed. It was a very difficult moment for me, seeing what other peoples “normal” was.
I LOVE my boys, and I LOVE what they bring to the world. They bring strength, and love and humour, but they are definitely different.
I guess my point is that although I look at the positive in my life, it’s difficult, it can’t always mask what’s REAL.
* note that I don’t feel this complete but need to get this piece out!!!

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